Needs and Expectations of Long-Term Cancer Survivors: Multi-Centre Study Protocol.

Cancer is a social issue as its outreach affects not only mortality (it is the second cause of death in our environment) but also the costs due to morbidity and the distress it causes, as well as the losses and consequences in personal, family, work, and even social areas. This study is trying to find out the health needs of long-term cancer survivors and their perceptions and expectations of the care they received during their survival stage. For this, a joint, cross-sectional descriptive study with a qualitative and quantitative approach has been designed. For the qualitative approach, we have used different focus groups representing different geographical areas of the Spanish territory. For the qualitative approach, we have used a validated questionnaire. This study will provide a better knowledge of the quality of life of these patients, as well as their level of unmet and even unexpressed needs, in order to develop effective strategies and interventions that allow for the implementation of adapted care plans that include such unexpressed needs. This study will also allow for the creation and development of assessment methods for health results from the patient's perspective and experience. These issues require a multidisciplinary, complex approach. These survivors may require not well-known health services, as the number of these patients has grown recently, and their survival time is also longer. This research explores a wider and more thorough perspective of long-term cancer survivors' needs, experiences, and expectations to be achieved.

Plan de cuidados en las necesidades psicoemocionales de los supervivientes de cáncer / Care plan in the psychoemotional needs of cancer survivors

El cáncer es un evidente problema de salud mundial. Es una enfermedad social: padecerla afecta tanto a la mortalidad como a los costes asociados a la morbilidad. La supervivencia de estos pacientes está aumentando, por lo que se está produciendo una transición hacia la cronicidad de la enfermedad. En el presente artículo se describe la situación actual de estos pacientes a nivel nacional e internacional, las características de este colectivo de pacientes, sus necesidades y expectativas, consecuencias derivadas de los tratamientos, afectaciones sociales y psicológicas. Finalmente, se propone un plan de cuidados, con sus criterios de evaluación e intervenciones, para este tipo de pacientes

Cancer is an evident health worlwide problem. It is a social disease: suffering cancer involves both costs related with morbidity and mortality. The increased surveillance of these patients produces a transition to chronic disease, changing their needings, expectations and treatment derived consequences, together with social and psychological affections. Finally, we propose a specific care plan, with outcomes and interventions for this kind of patients

Estrategias para la mejora del cuidado del paciente oncológico: Resultados del proyecto SHARE (Sesiones interHospitalarias de Análisis y Revisión en Enfermería) / Strategies for improving care of oncologic patients: SHARE Project results

El tratamiento oncológico supone una gran carga para el paciente y su entorno familiar que requiere una individualización por parte del personal sanitario. Las enfermeras son las responsables de la coordinación de los cuidados y las profesionales más cercanas al paciente y a su familia; sin embargo, en España no existen aún protocolos de actuación unificados para la atención a los pacientes oncológicos. La Sociedad Española de Enfermería Oncológica desarrolló entre el año 2012 y el 2014 el proyecto SHARE con el objetivo de establecer estrategias que mejoren la calidad de vida y los cuidados enfermeros en el paciente oncológico y su familia. Este proyecto se llevó a cabo en 3 fases. Primero, se realizó una búsqueda bibliográfica para identificar las estrategias, intervenciones y herramientas que mejoren el cuidado del paciente oncológico. En una segunda fase se consensuaron estas intervenciones y en una tercera fase otro grupo de expertos en cuidados oncológicos las categorizó, determinando las más prioritarias y factibles para su implementación. Se identificaron 3 acciones estratégicas: disponer de un profesional de Enfermería de referencia para el seguimiento de manera presencial o telefónica, diseñar programas de educación terapéutica con protocolos específicos y garantizar la formación específica de los profesionales. Estas acciones están orientadas a mejorar la atención sanitaria y la calidad de vida de los pacientes oncológicos y sus familias a través del desarrollo de roles enfermeros avanzados, con un mayor grado de autonomía. Esto sitúa a las enfermeras como gestoras y coordinadoras del cuidado integral del paciente oncológico

Cancer treatment is a major burden for the patient and its family that requires an individualized management by healthcare professionals. Nurses are in charge of coordinating care and are the closest healthcare professionals to patient and family; however, in Spain, there are not standard protocols yet for the management of oncology patients. The Spanish Oncology Nursing Society developed between 2012 and 2014 the SHARE project, with the aim of establishing strategies to improve quality of life and nursing care in oncology patients. It was developed in 3 phases. First, a literature search and review was performed to identify nursing strategies, interventions and tools to improve cancer patients’ care. At the second stage, these interventions were agreed within a group of oncology nursing experts; and at the third phase, a different group of experts in oncology care categorized the interventions to identify the ones with highest priority and most feasible to be implemented. As a result, 3 strategic actions were identified to improve nursing care during cancer treatment: To provide a named nurse to carry out the follow up process by attending to the clinic or telephonic consultation, develop therapeutic education with adapted protocols for each tumor type and treatment and ensure specific training for nurses on the management of the cancer patients. Strategic actions proposed in this paper aim to improve cancer patients’ healthcare and quality of life through the development of advanced nursing roles based on a higher level of autonomy, situating nurses as care coordinators to assure an holistic care in oncology patients

[Strategies for improving care of oncologic patients: SHARE Project results]. / Estrategias para la mejora del cuidado del paciente oncológico: Resultados del proyecto SHARE (Sesiones interHospitalarias de Análisis y Revisión en Enfermería).

Cancer treatment is a major burden for the patient and its family that requires an individualized management by healthcare professionals. Nurses are in charge of coordinating care and are the closest healthcare professionals to patient and family; however, in Spain, there are not standard protocols yet for the management of oncology patients. The Spanish Oncology Nursing Society developed between 2012 and 2014 the SHARE project, with the aim of establishing strategies to improve quality of life and nursing care in oncology patients. It was developed in 3 phases. First, a literature search and review was performed to identify nursing strategies, interventions and tools to improve cancer patients' care. At the second stage, these interventions were agreed within a group of oncology nursing experts; and at the third phase, a different group of experts in oncology care categorized the interventions to identify the ones with highest priority and most feasible to be implemented. As a result, 3 strategic actions were identified to improve nursing care during cancer treatment: To provide a named nurse to carry out the follow up process by attending to the clinic or telephonic consultation, develop therapeutic education with adapted protocols for each tumor type and treatment and ensure specific training for nurses on the management of the cancer patients. Strategic actions proposed in this paper aim to improve cancer patients' healthcare and quality of life through the development of advanced nursing roles based on a higher level of autonomy, situating nurses as care coordinators to assure an holistic care in oncology patients.

Guía de práctica clínica sobre terapia intravenosa con dispositivos no permanentes en adultos / Clinical practice guideline on intravenous therapy with temporary devices in adults

El objetivo principal de la guía es proporcionar a los profesionales sanitarios una herramienta que les permita tomar decisiones basadas en evidencia sobre aspectos de la atención al paciente adulto con indicación de terapia intravenosa con dispositivos no permanentes. Además, se señalan los objetivos secundarios siguientes: aumentar la calidad de las intervenciones, evitar complicaciones relacionadas con la terapia intravenosa y reducir la variabilidad existente entre los profesionales sanitarios.

The guideline includes recommendations for taking care of adult patients with intravenous therapy who are at primary care centres, hospitals and homes.

Las taxonomías enfermeras NANDA, NOC y NIC en la práctica asistencial hospitalaria / The nursing taxonomies, NANDA, NIC and NOC in hospital practice

Introducción. El uso de taxonomías obtenidas en contextos ajenos al nuestro obliga a una validación preliminar que posibilite la adecuación de éstas a nuestra realidad asistencial. Objetivos. Mejorar la organización de los cuidados en las unidades de hospitalización y desarrollar e implementar un método de trabajo para enfermería, con unos registros coherentes y eficientes. Material y método. En una primera fase se forman los profesionales que actuarán como dinamizadores del proyecto, y posteriormente se realiza la elaboración e implementación de planes de cuidados estandarizados mediante grupos de discusión y consenso compuesto por 4-7 profesionales expertos en el cuidado de las enfermedades de mayor prevalencia en las unidades de hospitalización de nuestro ámbito de estudio. Conclusiones. La elaboración de planes de cuidados estandarizados mediante la técnica del consenso y el uso de las taxonomías enfermeras son herramientas válidas para la homogeneización de cuidados y el desarrollo de la disciplina enfermera

Introduction. The use of taxonomies originally developed in contexts other than our own means that a preliminary validation is required to adjust them to our healthcare system. Objectives. To improve the management of nursing care in hospitalization units and to develop working systems for nursing staff with coherent and efficient records. Material and method. The project will be performed in two phases: 1) Instruction of staff members who will act as project leaders. 2) Design and implementation of standardized care plans by discussion groups composed of 4 to 7 experts in the care of the most prevalent diseases in the units collaborating in the study. Conclusions. The design of standardized care plans by the consensus technique and the use of nursing taxonomies are valid tools for the homogenization of nursing care and the development of the discipline of nursing